Jewish Celiacs Newsletter, Vol.4, No. 1, hit the streets and the U.S. Post Office a few weeks late this time. Why? Well, between you and me, I was pretty busy with helping out as a volunteer in the last Presidential election, and to my dismay, my candidates of choice, Senator John McCain and Governor Sarah Palin, only got fifty-eight million (58,000,000) votes, and lost by about four million (4,000,000) votes to Senators Barack Obama and Joe Biden. Not bad, but no prize. However, there is always tomorrow. (*** To the left is a photo of me on the campaign trail, and below that I can be seen in the background as John and Cindy McCain speak to three women at our table. I spoke with Senator McCain, and you can see him holding a manilla envelope that I gave to him, which contains the photo to the left, and a copy of Jewish Celiacs Newsletter. He actually shook my hand three times that day. He was very happy to have my support. We are fellow Veterans.) No further comments on that subject because this is mainly a blog about health matters, and don’t really wish to debate with my readers here about who was, or will be the better candidate next time, etc., etc., etc. As to the photo on the left, I got a lot of positive car honks and waves though a few either gave me the finger, or cursed me out. Goes with the territory.

Joining John and Cindy McCain for lunch at Philly's Reading Terminal - *This photo appeared in The New York Times online with a story.
The second reason why JCN was late coming out this time was the usual, Jewish holidays like Rosh HaShanah and Yom Kippur, and that minor one that may compete with Xmas in the minds of many Jewish parents, Chanukah, a celebration of the military victory of Judaism over Hellenism, a form of ancient, Greek paganism in the Land of Israel. Chanukak isn’t exactly just a “festival of lights” that seems to compete with that other “festival of lights” holiday, Xmas, and maybe still that other “festival of lights” holiday, Kwanzaa, founded by Ron Karenga, “an African American author, political activist, college professor, and convicted felon,” according to Wikipedia. Chanukah is actually a victory celebration over oppression, and finding meaning in beginning anew by rededication the Temple with oil that lasted for eight days. B’ruch HaShem!
Now, let’s get on with the subjects at hand, Celiac Disease and Kosher Food, and all of the items that have to do with them like the JRA (Jewish Relief Agency), and Rabbi Marvin Hier, the Academy Award-winning producer and founder of both the Museum of Tolerance and YULA, an Orthodox day school, and a Celiac, plus so much more.

A couple is having something at the JRA Cafe.
The lead story in this edition, Jewish Relief Agency: Feeding the Jewish Poor, is about a great organization, you guessed it, the Jewish Relief Agency, a Project of Guideline Services of Lubavitch House, and the largest provider of food assistance to the Jewish poor in the Greater Philadelphia region. The JRA held a program on December 7, 2008 at the Valley Forge Convention Center in King of Prussia, PA, to benefit hunger relief. After I contacted its Exec. Director, Amy Krulik, she arranged for me to cover it, and I’m glad that I did. However, before I started to explain what took place at this gala affair to bring attention to the plight of the Jewish poor, I ran down an unfortunate time in my life when I was not only poorer than I am now, but homeless as well. That was from “mid 1980 to late 1981.” My personal tale of woe, though an extreme situation, illustrates what could happen to anyone of us at any time. Not every one of us is rolling in the dough like the stereotypical view of the Jew has it. Not all of us behave like fellow Jew, Bernard Madoff, who had gained the confidence of many Jews and non-Jews, and managed to easily rip both of them off, which included many Jewish charities who trusted in him. Many of us are simply poor, or average middle class folks, and we couldn’t have invested with him if we had wanted to. B’ruch HaShem!
My JRA article began with this from the Torah, Vayikra (Leviticus) 25:35-38 - 35: And if thy brother be waxen poor, and his means fail with thee; then thou shalt uphold him: as a stranger and a settler shall he live with thee. 36: Take thou no interest of him or increase; but fear thy G-d; that thy brother may live with thee. 37: Thou shalt not give him thy money upon interest, nor give him thy victuals for increase. 38: I am HaShem your G-d, who brought you forth out of the land of Egypt, to give you the land of Canaan, to be your G-d.
I continued by giving my reasons for supporting organizations like the JRA by first recounting an unfortunate chapter in my life, which went this way:
“From mid 1980 to late 1981, I had been among the poor, the hungry, and the homeless on the streets of Philadelphia, PA. I slept on grates, on steps, on park benches, in doorways, and in SEPTA’s subway stations in all kinds of weather, and often sharing those spots with others too. I begged for spare change for a cup of coffee, a bowl of hot soup, or even a sandwich. When I asked to do work for food, few hired me, only for a few hours, and only now and then. Once, a man took me in, and fed me for about a week, but most of the time, I traveled on foot all over Philly and its suburbs. I avoided most people because of the times that I had been called a bum, laughed at, cursed out, spit on, beat up and even robbed of any spare change that I had gotten. However, most people simply ignored me as if I didn’t exist!…. During the winter of 1980, while trying to keep warm in Philly’s 30th Street Station, I was jailed for being a vagrant. After weeks in the Street Road lockup, I was released, hitched a ride on I-95, and headed south to Baltimore, MD. The morning of my arrival, I was awakened from my sleep on a bench across from a police station by several, young, black thugs who were beating me in my sleep. I quickly jumped up, and they ran. The police did nothing. When I was thirsty, no bar would even give me a glass of water. Later, an elderly Jew gave me some money for food, and clothes to find work. Someone robbed me of those clothes while I was out of my abode….. Fed up with Baltimore, I hit the road, and headed further south. I went into a building on the outskirts of the city to get directions. There, I was arrested by two white cops, taken to a court with no bail set, or a hearing, and jailed for the phony charges of “breaking and entering with a weapon.” Weeks later, they put me in a mental institution where I was beaten by two black ward boys who forced me to take their meds at 2 AM. Drugged, I spent about five months in captivity until one of my close friends, the late Steven Jacobs, founder of the Jewish Hospitality Committee, got the Maryland hospital to release me in his custody back in Philly. Luckily, I remembered Steve’s number one day, called him by reversing the charges, told him all that had happened to me, and about a week later I headed back to Philly. —- B’ruch HaShem.”
If you have ever been poor, or down and out, by this society’s standards, abused, or not, you should understand how grateful I would be to be able to get whatever I could to just stay afloat, especially in this present economy. Need and even greed has their place until the latter grows out of control. Bernie knows!
Other friends of the poor who shared their time and effort at this Jewish Relief Agency event were “JCC Klein’s Meals On Wheels, Jewish Federation’s Mitzvah Food Project, SHARE Food Program, and Philabundance, which claims to provide food to about 65,000 people per week.” Since there really isn’t enough for one group to feed one family for an entire month, or even a single person for that same time period, that family, or person should try to appeal to several different groups at once to get by until the next month. What I didn’t mention in the article is that if you are a poor person with Celiac Disease, you will most likely have a harder time because most foods containing grain products (bags of noodles, boxed cereals, etc.) that are contributed to groups like the JRA are made from wheat, rye, and barley, and if you are concerned about oats, that too. Also, the canned vegetables, fruit, and fish may, or may not have, gluten bi-products in them. It’s a real tough call for us (Celiacs) because I am a recipient of JRA’s kindness, and I know what the problem is. Meanwhile, what I cannot eat, I give to a non-Celiac person in need.

People ask questions at Katz Gluten Free Bake Shop booth while children play, and adults taste samples.
Some of the Gluten-Free folks at this greatl Kosher gathering included:
* Katz Gluten Free Bake Shop - 51 Forest Road, Suite 316 #58, Monroe NY 10950, Phone: 845-782-5307, Fax: 845-774-1540, Email: Info@katzglutenfree.com, Web: katzglutenfree.com
* KoV Foods - P.O. BOX 133, Ardmore, PA 19003, Phone: 610-649-3601, Email: kov@kovfoods.com, Web: kovfoods.com/
* Sheffa Foods, Inc. - P.O. Box 1175, Sharon Hill PA 19079, Phone: 484-494-1249 or 800-494-1956, Fax: 484-497-5436, Email: Info@sheffafoods.com, Web: sheffafoods.com
If I missed anyone, please get in touch with me, and maybe I can add your name and address as a Kosher, Gluten-Free merchant on Jewish Celiacs Newsletter.
You can reach the JRA at: Jewish Relief Agency, 125 Montgomery Avenue, #A3, Bala Cynwyd, PA 19004, Phone: 610-660-0190, Email: jra@jewishrelief.org, Web: jewishrelief.org. The information about their gala event can be found at: jewishrelief.org/2008event/CurrentExhibitors.html
The aticle (with photos) was too long for me to go into it here except to say that there were many food companies, health and welfare services, and entertainers who took part, and the crowd seemed to be taking it all in. The children loved it, and the band was hip. May G-d bless the JRA, and the other food-givers.
My regular column, Kosher Food News, featured a piece about (1) a relatively one-year-old, Perlin’s Kosher Vegetarian Restaurant at 2442 Route 38, Cherry Hill, NJ, a kosher eatery that you may want to try though it’s somewhat pricey, (2) the first time that Kosherfest (2008) held their yearly event at the Meadowlands Exposition Center in Secaucus, NJ. “Kosherfest 2009” will run between October 27 and 28, and (3) “… the ever growing economic crisis on New York City’s poor, not being able “to afford basic nutritious food,… UJA-Federation of New York provided a $400,000 grant to Metropolitan Council on Jewish Poverty.” This should allow Met Council’s food distribution sites to “remain stocked to provide kosher food to all who are hungry.” Families have trouble with rent, heat, food and meds.” What’s so new? It’s still good to know that someone cares!
Tu B’Shvat and the Shehechiyanu Blessing was another front page piece, and told of how many Jews celebate “the holiday of the trees,” Tu B’Shvat, on February 9, 2009, or Shevat 15, 5769 by our calendar. The blessing from Berachot 54a, Pesakhim 7b, Sukkah 46a, etc. goes like this:
“Blessed are You, Lord our God, King of the universe, who has kept us alive, and sustained us, and enabled us to reach this moment.”
Transliteration: Ba-ruch A-tah Ado-noi E-lo-hei-nu Me-lech Ha-olom, She-heh-che-yah-nu Ve-ki-yi-ma-nu Ve-he-gi-a-nu Laz-man Ha-zeh.
Trees provide oxygen, food, and medicine every day! Tu B’Shvat is 41days after the last day of Chanukah, Tevet 2, 5769 (Dec. 30, 2008). B’ruch HaShem.
I was happy to publish a Q & A With Rabbi Marvin Hier by Adam Wills, which I headlined as “An Interview With Rabbi Marvin Hier, A Celiac” on page 3. Adam Wills is the senior editor of The Jewish Journal of Greater Los Angeles. Besides being “… the [Simon] Wiesenthal Center’s dean, Hier is an Academy Award-winning producer and founder of both the Museum of Tolerance and YULA, an Orthodox day school,” but most impotantly to Mr. Wills story, and to us as Celiacs is that Rabbi Hier is a Celiac too. I think that in the back of our minds we imagine that famous (or wealthy) people never have health problems (or even money problems), and it could only happen to us poor, and middle income folks. Well… it’s doesn’t!
An excerpt of Adam Wills interview with Rabbi Hier in Jewish Celiacs Newsletter ran thusly:
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Adam Wills: When were you diagnosed as celiac?
Rabbi Marvin Hier: Four or four and a half years ago.
AW: What led doctors to test you?
MH: I always had acid reflux. When I would eat ketchup, spicy things, I would feel something, like a discomfort. I was first given Prevacid, and that worked. And then when someone in the family had celiac everyone in the family was tested [to find out] who the carrier was. I came out positive.
AW: What kind of test was it?
MH: A blood test. And the doctor who diagnosed one of my grandchildren told me, ‘Look, here’s what you do. For 30 days go gluten-free. At the end of the 30 days, try one of the things that caused you discomfort.’ So I went down to Pat’s [kosher restaurant] and I had lots of French fries loaded up with ketchup. I had no reaction. So the doctor said to me, ‘Here’s what happened. You might have had a hiatus hernia that was ulcerated. But it was not ulcerated because of ketchup, sauerkraut, pickles. It’s ulcerated because you probably love gluten products.’ Once she told me that I said, ‘You know what? I live off challie, bagels … that was my staple.’
So after the blood test came back positive for me, she told me that I should tell my doctors that I have celiac. Sure enough, many of the doctors said when [they] went to medical school these wheat allergies and all these things were unknown.
Now for the last four and a half years I’ve had to find a different food lifestyle which gets me off the challie. I don’t have any of that any more. I’m very strict, very strict.
AW: Do you remember your parents having digestive problems?
MH: My father for sure had celiac. I have a picture of my father. He [had a] very skinny face, drawn. The doctors in his age, they didn’t know about it.
AW: Not until after World War II, because of wheat shortages.
MH: And there’s another thing to this. Wheat, challie, breads, cakes are a staple of the Jewish diet. When I went to yeshivah, who took a tuna sandwich? The biggest deal was what kind of bun, muffin, honeycake or anything that I could eat that was made in the bakery.
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This entire interview can be found in Jewish Celiacs Newsletter Vol. 4, No. 1, the paper. Send me a letter, and regular postage, and I will mail you a copy of this edition if I have any left. If not, I will return your postage at my expense.

Celiac Disease - A Hidden Epidemic
Besides the JCN Editorial and Letters to Editor on page 4, my Book Review was on what I consider the best book on the subject of Celiac Disese bar none for the moment, “CELIAC DISEASE — A Hidden Epidemic“ by Dr. Peter H. R. Green, M.D., the Director of the Celiac Disease Center at Columbia University, and co-author, Rory Jones, a science writer and award-winning producer, diagnosed with Celiac Disease and Dermatitis Herpetiformis in 1998, a year before I was diagnosed with CD at Philly’s VA Medical Center (Hospital). I cannot say enough good things about this book here though I did say more in my review of it in this edition of JCN. They cover the whole shmear - like in spreading a good coat of paint. Whatever you can imagine, it’s in their book. Buy it if you really want to know about Celiac Disease from A to Z! You may also find it in a public library.
Under Jewish Diseases this time, I virtually copied (quoted) all that there was about “Familial Mediterranean Fever,” or FMF, a Sephardic, Jewish disease, which “… is characterized by recurrent painful episodes of fever, peritonitis (abdominal pain), pleuritis (lung inflammation leading to painful breathing), and/or arthritis in the hip, knee, and/or ankle, lasting 2 - 3 days. … .” There’s more to it than that, but if you want to know now, go to jewishgeneticscenter.org/ and get the whole gluten-free matzo ball on it. I alternate between Ashkenazic and Sephardic Jewish disease each edition, but because there are twice as many of the former, I feature two editions in a row of the former, and then one edition of the latter, and repeat that formula over and over again.

I'm seated at my table, handing out copies of Jewish Celiacs Newsletter at the hip 2008 Philly Zine Fest.
I had fun, if that’s possible, when I paid for, and set up, a table at last year’s 2008 Philly Zine Fest, held on Sunday, October 5, 2008 at The Rotunda, 4012 Walnut Street in Philadelphia, PA. “Zine” is an abbreviation for the word, “magazine.” I grew up with the term, “mag.” As I had stated, “It was rad. It was cool, and it was pretty hip. There were workshops, skillshares and more. Contact PZF at phillyzinefest.com. Dig it!”
I made some real changes in Symptoms & Results of Celiac Disease. I added, (Revised—2009). Now, it’s more up-to-date, and more detailed though it may be a little harder on the eyes because I had to get all of the information I could manage to squeeze into a very small space, information culled from Dr. Green’s and Ms. Jones’ book, “CELIAC DISEASE — A Hidden Epidemic.” I will try to rectify that for JCN’s May 2009 edition.
There were no real changes to Celiac Restaurants (GF Menus Only!), Bakeries & Shops, but I did add “Perlin’s Kosher Vegetarian, 2442 Route 38, Cherry Hill, NJ 08002, 856-755-1116″ as a new spot in Kosher Restaurants & Shops in the Philadelphia Area.
Calendar of Events 2009 / 5769
Kosher Events
*** Kosherfest 2009, Oct. 27 - Meadowlands Expo Center, Secaucus, NJ
The dates for this are Tuesday, October 27 (10am-5pm) and Wednesday, October 28 (10am-4pm). Go online to www.kosherfest.com for more information, or call 1-207-842-5504 to reserve your space months in advance.
*** Ontario Travel Bureau Glatt Kosher Tours - “The Wandering Jew” — Costa Rica Discovery & Adventure-7 nights (Jan 18) # So. Africa: The Comprehensive Tour-10 nights (Jan 19) # Ski & Winter Adventure - Banff & Canadian Rockies-7 nights (Jan 19) # Peru - Incas & Amazon-7 nights (Jan 19) # Australia & New Zealand-25 nights (Jan 25) # Kosher tour to the Galapagos Islands.- (Jan 29-Feb 8?) # South Africa: The Comprehensive Tour-10 nights- (Feb 9) # Taste of Tuscany: Cultural and Gastronomic Tour- 6 nights- (Feb 13) # Costa Rica Discovery & Adventure-7 nights (Feb 15) - Call 1-800-893-5617 for more Kosher tours in 2009. — The link above leads to a list of Glatt Kosher restaurants, bakeries, butchers, and more.
*** Kosher Community Surveys — Philadelphia, Fall 2008-09 - Go to http://kosher-community-surveys.com/open_surveys.html and get involved in voting for the best kosher restaurants, bakeries, butchers and other retailers in and around Philadelphia — See the 2007 Philadelphia Area Kosher Community Survey Final Report online.
Celiac Events
*** The Southern New Jersey Celiac Support Group of CSA (Celiac Sprue Assoc.) The 2009 web site schedule:
Jan. 4: Ann Whelan speaks, Feb. 1: Mr. Ritts bakery, Mar. 8: NOTE - This is the 2nd Sun. All meetings on the first Sunday were bumped., Apr. 5: Gluten Free Bingo - - - All monthly meetings are on Sundays, 2 to 4 PM at the Barry D. Brown Health Education Center Virtua Health/West Jersey Hospital at Carnie Blvd. & Evesham Rd., Voorhees, NJ. Call Bill Lucas at 609-387-7139.
*** Natural Goodness Market & Café will have Sid Karp, Editor & Publisher of the Jewish Celiacs Newsletter, to give “A Wheat Free / Gluten-Free Primer,” March 18, 2009, 6:30 PM, 2000 Walnut St., Phila., PA. with questions afterwards. We’ll have free, healthy snacks too. Call 215-977-7749 for more info.
*** The Northeast Fibromyalgia Support Group is having Sid Karp, Editor & Publisher of Jewish Celiacs Newsletter speak on Monday, April 27, 2009, 12 noon, at Nazareth Hospital Medical & Wellness Center, 1407 Rhawn Street, Phila., PA. Sid’s third talk with us, “Is Celiac Disease Related To Fibromyalgia?” Call 215-884-1504 for more.
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Send your Kosher, or Celiac, events to JCN-Events, POB 11200, Phila., PA 19136, or jcn.info@jewishceliacs.com with all particulars before the next Deadline, Apr. 15, 2009.
That’s all for now, and until the next edition comes out May 1, 2009, or Iyyar 7, 5769 as we say, or maybe sooner if there is some real breaking news.
Shalom aleichem!
Sid Karp: Editor & Publisher of Jewish Celiacs Newsletter
Photos & this blog are Copyright (c) 2009 Sid Karp, All Rights Reserved







Well, today I am 65. I was born on the second day of Shavuot, Sivan 7, 5703 (June 10, 1943), towards the end of WW II and the Holocaust that had taken the lives of approximately six million Jews and five million non-Jews. No one, when they are a teenager, can ever imagine what it is like to be 65, or older for that matter. However, here I am and the most that matters now is that I try to leave this world in whatever time is left, G-d willing, in a better shape than when I came into it. Why? Why not! I once told Lance Haver, who presently is the head of the Mayor’s Office For Consumer Affairs (in Philadelphia, PA) and had previously inherited the leadership of CEPA, Consumers Education & Protective Association, from the late founder, Max Weiner, that “It doesn’t make sense to be alive if you cannot do something for someone else.” He agreed. That’s why I joined and served on the board of directors of CEPA and walked the picket lines for other consumers. That’s why I agreed to be the administrator of the Holocaust Awareness Museum, founded by the late Yaakov Riz, from 2000 until 2005, and that’s why I created Jewish Celiacs and Jewish Celiacs Newsletter in early 2000. B’ruch HaShem!
What’s also new? Well, Jewish Celiacs marched in a parade to honor Israel’s 60th Birthday on May 18, 2008, and I have a photo taken by someone with my, new, Canon Powershot S5 IS camera, showing me with a sign that had taken me a little more than a while to make up the night before. I took a lot of shots that day. One of mine appears on the front page of this edition, Vol. 3, No. 2. Also, in this edition, I was able to get two writers to give the readers of Jewish Celiacs Newsletter a glimpse into what it is like to get involved with Dr. Peter J. D’Adamo “Blood Type Diet” (My Trip To Dr. D’s Blood Type Clinic by Olga Powell) and just what “Autism” has to do with Celiac Disease (Autism, CD & The Gluten-Free Diet by Robert Eckstein). I’m sure the readers of JCN will walk away with a fairly good insight to both Autism and the Blood Type Diet. Look forward to the next column by Robert this September, and Olga said that she might be willing to give us an update in the near future. Cool!
Shalom. I had mentioned in my last blog, in closing, that I would be going to